Archive for month: September, 2012

guest author: Joan Lange

28 Sep
September 28, 2012

 

 

    MOM WHISPERER
    The journey from life to death to life

 Death is an unknown to us, and for many, so is pain.  The journey my mother and my family took is a lesson to us all: Protect what you have and defend what you know in                  your heart to be true. And most of all listen.  Listen to the person loving you and living inside the body before you that seems lifeless.  Listen to all they say.

  It is the most important thing we can do on this Earth…listen to the suffering and the dying.

  Give respect to their vitality and give them peace as their vitality leaves them One fragment at a time.

This is the story of my courageous mother and the words she helped me and a few select others to hear.

I hope it helps you or someone you love.

Don’t miss anything.

My mother opened her eyes and looked out the window for the first time in the days since she’d been asleep from the morphine.  I was folding her blankets and said, it’s a beautiful day isn’t it?  Would you like some breakfast?

She replied “yes.”  That sounds nice,” smiling.  I was ecstatic and told my sister of her sudden awareness as I mixed a pitcher full of her special yogurt, vitamins and chocolate blend.

By the time I reached her room again, with her breakfast, she was asleep.  It had been the first time I had seen her awake, her old self again since the ordeal, in six months.  Yet I had barely spoken to her,  then had rushed out of the room.  That was two weeks ago and she’s said nothing since.  I wish I had stayed, not taken it all for granted. I wish I had stayed.

Now she is silent, except for a few feint cries of pain when the meds start to wear off.  After surviving horrific life events, and her recent amazing travail, she is undone by frailty.  My mother, well all of us, had hoped to capture a few more moments of happiness, peace, bliss….as she did just weeks before, enjoying the height of the rented wheelchair van, seeing the outdoors once more – Looking out that window in absolute wonder at ordinary things, street signs, telephone poles, cars, people mowing their lawns – things she had, just a few weeks prior, never hoped to see again.  She had been comatose for three months from the toxic pain meds that were meant to make her “easier to bathe” in the hospital.

My mother lived and spoke like Buddha – she was always at peace, even with her sadnesses.

 So I shall end each missive with one of her quotes.

This day, reliving these moments, by writing them, reminded me of one of the last things she said.

I was growing her wheat grass, to help her thrive.  I had just come in from watering the plants, blissful from the morning dew resting gently on each individual frond.  She smiled at me, and looking up above my head said ” Don’t let anyone take away the sparkles that G-d has given you.  They’re in your hair, and they’re beautiful!”

Mom saw my aura, I believe, as she saw many things, and heard many thoughts in those days that no one else heard.  She was in between two worlds.

Joan Lange

 

 

PAY NO ATTENTION TO THAT MAN BEHIND THE CURTAIN. . .

23 Sep
September 23, 2012

Most believe that courage is the result of conquered fears, but REAL courage is what happens when we continue to move forward DESPITE our fear.

YouTube Preview Image

I heard your interview and had to pull the car over to believe it was real . . .

21 Sep
September 21, 2012
Hello Martin,I heard your interview the other day on the radio.  I had to pull the car over to believe it was real.
My thoughts, my torn caregivers soul, and my heart…all there on the radio coming through your eloquent sincerity.What a relief – you spoke what I had witnessed and what toxified my entire being for 12 long years until my mom died, and even now. Read more →

Pitching an Employee-Owned Assisted Living Facility

19 Sep
September 19, 2012 YouTube Preview Image

An Enduring Sadness

12 Sep
September 12, 2012

 

 

Cheryl Sadeghee writes to say:

Over this past year, I have been working as a consultant in local nursing facilities, providing supportive and therapeutic interventions for their residents identified as suffering with various mood disorders or reported to have disruptive behaviors.  I love working with this population and have found it to be more of a vocation than an occupation.  Read more →

Terry Gross and Martin Bayne on Fresh Air

07 Sep
September 7, 2012

NPR    THE INTERVIEW  —  podcast

Terry Gross and Martin Bayne on Fresh Air

thank you for the interview with martin bayne. i was moved to tears. in the simplest of words he made all of this life make sense.. what a remarkable wonderful man!

Name: jeanne keenan
Email: thecostumecompany@verizon.net

Oh Terry; i am weeping. martin bayne’s story touched me so very deeply. this program was one of those “sit in the car and listen to the end” stories. in the late 1990s and early 2000s, my sister, jacki and i, experienced this. our parents had to move to assisted living when our mother’s alzheimer’s became too much for dad, who had been diagnosed with parkinson’s and later, with alzheimer’s/parkinson’s dementia. they lived together, then as she worsened, separately at the same facility. my sister and i often commented on how strange the nursing home “culture” appeared to us, and worried about the incredible changes our parents experienced after living in their own home for decades. even tho the nursing home/assisted living center was in our hometown, and even tho (some of) their friends on the “outside” came to visit. mr. bayne’s perspective on how death is not handled in these places rings true with respect to what my sister and i saw and heard in a very few brief comments our father made inadvertently. it seemed like the residents kept these issues inside the “fold,” and very very rarely shared their thoughts with us non-residents. His exquisite reflections, informed by his spiritual journey, provide additional perspective and meaning for us regarding the essay we prepared upon dad’s death, part of a service award nomination packet we prepared for the woman who was his aide. in the award ceremony, they read our essay. it let everyone acknowledge his death as well as her service. it’s the gift of significance, that mr. bayne was describing. i had never thought about this other function the essay/ the award ceremony could serve. until now. thank you so much. fresh air is just the best. how can i get a transcript of this interview? sincerely, gwynn henderson

Name: gwynn henderson
Email: aghend2@uky.edu

Susan Gray (SusanConwayGray) wrote:

I’m a first time listener and loved this interview! It was like listening to a beautiful flower unfold. Terry started with slow thoughtful questions for Mr. Bayne and his responses seemed to be get deeper and more stunning, until he discussed how compassion is the mindset he lives by and uses with those he lives with. This made my heart melt as I grapple with putting my older brother into a care center. He’s in his 50′s, developmentally disabled and bi-polar, and can no longer care for properly for himself. Plus he is in danger of harm from the larger outside community as he wanders like a wild man in the worst areas all hours of the day and night in the worst weather unproperly clothed. But I worry he will be “zombied out” by drugs and made to comply while he loses his freedom and he will run away. But this interview gave me great hope that he will find a good place filled with compassionate hearts to keep him safe but let him live his life. Thank you Terry for a terrific interview and Mr. Bayne for his profound insights into the human spirit.

Judith Wahl (Wahlbangers) wrote:

Thank you for this moving interview Mr. Bayne, and for your article and blog. I admire your “antidote” and your advocacy. We can all advocate for positive changes in healthcare and long-term care policies, but we cannot wait to take action… so my husband and I do what we can every day to improve the quality of life for residents of nursing homes and assisted living facilities.

We are the founders of Wahlbangers Drum Circle Organization, a Nonprofit dedicated to improving the quality of life for seniors through the joy and health benefits of recreational/therapeutic group drumming. We facilitate drum circles at many locations throughout California, and the residents love this activity! We provide drums which are accessible at all levels of ability, so within the drum circle everyone plays and everyone is equal. For at least an hour, the participants have their own identity within a social and communal setting. Please see www.wahlbangersdrumcircle.org for more information.

We are told time after time by Activities Directors that they would love to invite us to come every week, but they have nothing in their budget for our activity. We recently took a drum circle to an upscale assisted living facility, free of charge. The 25 residents in attendance had a wonderful time drumming, and many told us that they were delighted that they did not have to attend the other planned activity — making tissue paper flowers! The residents there pay an estimated $6,000 a month, and they are relegated to tissue paper flowers as an activity? They need a revolution! The “top-down management” never attends the drum circles. Our altruistic vision is that just once, one of the suits will attend a drum circle and see the joy and vibrancy in the participants’ faces – and just maybe find enough love and compassion to have his life forever changed.

Martin Jimenez (MartinJim) wrote:

As a geriatrician, I thought of myself as fairly knowledgeable about care facilities and the things that affect quality of life in them. I’ve taken care of many residents of ALFs. However, I found Terry Gross’s interview with Martin Bayne eye-opening. The psychic impact being witness to the decline and death of fellow residents was something I did not have a grasp of until I heard this interview. Thank you!

Jane Schultz (JaneCSchultz) wrote:

This is the first time I have ever been moved to comment. Thank you to Martin Bayne and Terry Gross for such an amazing exchange. I was so touched by Mr. Bayne, not just for what he revealed about life in an assisted living facility, but for revealing his own tenderness, kindness, and humanity. Mr. Bayne, you are amazing. I first listened to this interview in the car with my 9 year old. She and I sat in the driveway until the interview ended because we were both so engrossed. During dinner we listened again, with my 18 year old daughter present. We were all touched so deeply by the sentiments expressed by Mr. Bayne. The way Mr. Bayne connects with the people in his assisted living facility shows his own full involvement with life. Luckily, all the people he is in contact with benefit from this full involvement. What else are we here for except to fully live our lives as best as we can with compassion and tenderness? As his says, this compassion and tenderness must be directed toward ourselves as much as it is to others. I haven’t had a direct, felt experience of this to date, however I will now allow this into my life because I can see from his example how it is light years away from being selfish.

Sarah Campana (sarahcamp) wrote:

Thank you so much for the interview. Mr. Bayne does a remarkable service for his fellow residents and for the elderly in general. I am a Geriatric Nurse Practitioner and I love my elderly patients. When I look at them I see who they were, they youthful pilot, the young farmer with big dreams. Mr. Bayne conveys this and I only wish there were more people who could be such a lovely and wonderful spokesperson and archivist of our lives. We will all be older one day…it is inevitable, we will also one day die. We are born dying and that is not sad, it is a fact and should not be considered something to fight againtst. I so agree with his note of not acknowledging the death of another resident. They should have some service, mention what have you to note their passing. When I worked in hospice as an RN, our social worker or chaplain set a time for a very brief, memorial; for lack of a better word to allow whomever wished to say words or just be present to acknowledge the persons life. Getting older is a privalge and it is denied to many. Again, Mr. Bayne, thank you for what you do. I wish you were not stricken so young, but am amazed at what you do. Love the older people, they have knowledge, wisdom and deserve respect.

Theresa Waldron (kennethsmom) wrote:

I work as a caregiver (CNA) in an assisted living facility. The people (rightly) complain about the lack of activities or that they are childish and not age-appropriate. (Coloring with crayons is considered “arts and crafts,” for example.) They also complain about the way they are treated by staff, who are condescending and patronizing, and who can be quite rude and disrespectful to residents. Residents often dislike the food at the facility as well, which resembles lowly cafeteria food. For this they pay thousands of dollars a month. I never, ever want to live in one of these places, although with what they pay me, I could never afford it anyway. I think families could visit more often, too, and that would help. But they feel guilty for putting the person there, and if they are demented, they don’t want to have to deal with the changes in the person. Dementia really is not dealt with, by residents, staff, or family. It’s the elephant in the room. It seems people either overreact to people with dementia, or ignore them. It would be better to acknowledge it is there and find new ways of dealing with the person. I’d like to see a concentrated effort made to treat these people with dignity as they live out the end of their lives.

robyn kochan (kindredpup) wrote:

Thank you for addressing this greatly misunderstood and often avoided issue. The regard we have for our elders in the US is tragic. Too many assisted living facilities are substandard places offering food that is not nutritional, activities that do not engage the mind, and rules and regulations for the convenience of staff and administration. Costs are exhorbitant and quality of “life” is poor. More than assisted “living,” many places are assisted “stagnation.” The concept of how we care for our aged (and those who are younger like Mr. Bayne but need assistance) needs to be dramatically revamped. Not only must we realize that just because someone is a particular age, it does not automatically mean they are incapable, but we must treat persons with true dignity and recognize the many talents and gifts they still have. The more we make them give up so we can “assist” them, the more we rob them of their dignity and starve them of life. Thank you for opening the door to shed some light on this sensitive subject that no one wants to talk about but must. Everyone should be required to make a surprise visit to an assisted living facility and have a meal there. They would probably leave running. What a disgrace for humanity.

Joe Montani (Tennen) wrote:

Wonderful interview; thank you, Mr. Bayne, and thank you, Terry. Hearing the quote from the Buddha Shakyamuni about “turning the stream of compassion within” must indeed have been powerful, but I believe that this hearing was preceded by deep practice on Mr. Bayne’s part, and Mr. Bayne was in a state of readiness to open naturally to its wisdom. It’s not usually just a matter of luck. But the members of Mr. Bayne’s community are truly fortunate to have such a Bodhisattva — a Comapassion-Being, a Wisdom-Being — in their midst, and as their friend. I, too, as a far-flung radio-listener in the desert, am fortunate hereby to be a part of his community as well. Again, thank you both, and thank you All.

 

The Dirty Little Secret of Assisted Living

02 Sep
September 2, 2012

 Relax said the Night Man

We are programmed to receive

You can check out any time you’ld like

But you can never leave

  –Hotel California

We’ve all seen them.

Those slick, liquid crystal display billboard ads for assisted living. You know the ones — an attractive couple in their late sixties or early seventies strolling along a stretch of beach, or coming off the links after an invigorating afternoon of golf.

And Baby Boomers eat this stuff up.

When Mom’s Alzheimer’s  turns a critical corner, and it’s time to make some tough decisions, somewhere in their subconscious mind they see the picture of the smart-looking couple standing by the golf cart and think, Everything will be just fine. Besides, Mom has always wanted to learn how to golf.

That’s what assisted living facilities pay PR firms for. . . I call it Subconscious Engineering.

And it’s all “fiction” (“lie” is the more accurate term, but I can live with fiction).

Here’s the truth. Assisted living – as the name implies – is a series of services provided to those individuals who can no longer provide them for themselves. Dressing, bathing, eating, toileting are examples of the type of services I’m talking about. Sometimes the services are provided because of frail aging, other times it might be ALS, Parkinson’s or a bad car accident.

Now, ask yourself, How many people with this kind of medical-needs profile are regularly out on the golf course?

Now the interesting part. . . the subconscious mind can’t distinguish fiction from fact. It’s not even remotely rational and yet it’s the most persuasive part of the decision making process. (The same billboards 50 years ago shouted “Studies show more doctors smoke Camels than any other cigarette.”)

Assisted living facility owners pay top dollar for sales and marketing. But unlike the cigarette smokers, their resident’s can’t quit.

Once you’ve sold your home (or the more likely scenario is that your kid’s sold it out from under you)and all your furniture and your car, and cashed in your securities portfolio — all to pay the $3,000-$15,000/month (no, that’s not a typo) it costs for assisted living, you don’t just get disgusted one day and decide to leave.

And that’s the dirty little secret. One day every resident has an epiphany. . . I’m going to die in this place.

And from that moment forward, your home becomes your hospice.

-MK Bayne

© 2012 Copyright - The Voice of Aging Boomers